I should know that movement disorders are a kind of living hell because I suffer from one. I don't know how I make it through some days and it worries me that I won't end up as bad off Michael J Fox has apparently gotten. Hell if rumors are to believed it definitely played a part in Ozzy's death at 76. Course he partied hard so maybe had he not done that maybe he would have still gotten Parkinson's, but not until like 90 you know?
For me I always had twitches like in this video. This is not me. Just you can literally find dozens or more videos like this on YouTube:
But until I turned 28 I only had twitches like in that video. Arms/legs and really not that bad. Frankly until I turned 28 and it suddenly became worse I guess I assumed everyone has this to some extent. My dad said no he didn't. I do think it comes down the maternal grandfather's line as he used to tell me his legs twitched to some extent after a long days work.
In January 2010 I suddenly became aware that my right temple was twitching and not stopping like all the other twitches had always done before. I would twitch a little at a time in my arms, legs, side, but they would always quit rather quickly (usually). My right temple did not for 15 months. Then it added the right side of my forehead, then jaw muscles, then all over both sides of my head. It now affects the back of my neck, arms way worse. Hell I've had a twitch between my ass and balls that seems to be annoyed by becoming ill and then developing a cough.
Why the change in 2010? Doctors don't know. This is the really shitty thing about movement disorders. Even with all the millions of dollars spent on Parkinson's they still don't know. But there are tremors, tourette's, tardive dyskinesia, and mine I'm told is generalized dystonia. I've also been told it could be benign fasciculation syndrome. Basically a fancy way of saying you twitch, it won't kill you, and we don't know why. ALS also tends to begin with twitching, but then usually (not in Stephen Hawkings case) progresses rapidly to death in 5 years as you become unable to move, including breathing.
I suspect it's a direct result of becoming infected with some sort of virus or bacteria or maybe many types can cause these disorders. Probably in combo with that person's DNA. They had made a discovery not long ago that multiple sclerosis is likely somehow caused by the Epstein-Barr virus based on military records, with all the veterans they help via the VA and all the data that creates.
All I know is I don't think I did anything to cause this outside of becoming infected with God knows what March 2009. I thought head cold, but didn't go in and get it checked out. I was a kid without insurance. Covid may have made it worse too, but I'm not as decided on that.
With mine the unavoidable hell I have to deal with is that anything I do results in these twitches and oftentimes they don't go away for a few days at a time like they used to when I was young. The sensation of what it feels like has been elusive for me to describe. If you would really like to know what it feels like go to the doctor's office and ask them to run an electric current through your muscles. Then imagine you can't make that sensation stop unless it wants to. Showering, grocery shopping, lifting anything pisses it off royally.
For me I always had twitches like in this video. This is not me. Just you can literally find dozens or more videos like this on YouTube:
But until I turned 28 I only had twitches like in that video. Arms/legs and really not that bad. Frankly until I turned 28 and it suddenly became worse I guess I assumed everyone has this to some extent. My dad said no he didn't. I do think it comes down the maternal grandfather's line as he used to tell me his legs twitched to some extent after a long days work.
In January 2010 I suddenly became aware that my right temple was twitching and not stopping like all the other twitches had always done before. I would twitch a little at a time in my arms, legs, side, but they would always quit rather quickly (usually). My right temple did not for 15 months. Then it added the right side of my forehead, then jaw muscles, then all over both sides of my head. It now affects the back of my neck, arms way worse. Hell I've had a twitch between my ass and balls that seems to be annoyed by becoming ill and then developing a cough.
Why the change in 2010? Doctors don't know. This is the really shitty thing about movement disorders. Even with all the millions of dollars spent on Parkinson's they still don't know. But there are tremors, tourette's, tardive dyskinesia, and mine I'm told is generalized dystonia. I've also been told it could be benign fasciculation syndrome. Basically a fancy way of saying you twitch, it won't kill you, and we don't know why. ALS also tends to begin with twitching, but then usually (not in Stephen Hawkings case) progresses rapidly to death in 5 years as you become unable to move, including breathing.
I suspect it's a direct result of becoming infected with some sort of virus or bacteria or maybe many types can cause these disorders. Probably in combo with that person's DNA. They had made a discovery not long ago that multiple sclerosis is likely somehow caused by the Epstein-Barr virus based on military records, with all the veterans they help via the VA and all the data that creates.
All I know is I don't think I did anything to cause this outside of becoming infected with God knows what March 2009. I thought head cold, but didn't go in and get it checked out. I was a kid without insurance. Covid may have made it worse too, but I'm not as decided on that.
With mine the unavoidable hell I have to deal with is that anything I do results in these twitches and oftentimes they don't go away for a few days at a time like they used to when I was young. The sensation of what it feels like has been elusive for me to describe. If you would really like to know what it feels like go to the doctor's office and ask them to run an electric current through your muscles. Then imagine you can't make that sensation stop unless it wants to. Showering, grocery shopping, lifting anything pisses it off royally.
