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Hospital Visit, Treatment Is Over. But.. I'm STILL Not Going Home!

Mitchell

Level of Coral Feather
Joined
Sep 9, 2002
Messages
33,632
Points
63
I've been gone for almost four days, since early Friday morning.

On Friday morning, I had to take my mom to the ER at St Clares. She was coughing dark, heavy green mucus, with a little blood, and Dr B admitted her to the hospital. Then, of course, the fun began again!

Of course, many tests were taken, the most significant of which were of my mom's heart. The doctors called in a heart specialist. After tests on her heart, the heart Dr, a very nice man, determined that she has nothing structurally wrong with her heart. However, she's been having very weird blood pressure, and a rapid, racing heartbeat. The Dr thinks it could be from the chemo.

While we were there, in addition to the tests, my mom had her last radiation treatment, which was today.

As happened the last time, Dr B, perhaps with pressure from Medicare, and hospital adminstration, released her. My mom feels weak. Medically, there is no reason for us to stay in Denville. She has no more Dr visits, no more chemo sessions, and no more radiation treatments. Our next meeting is in anywhere from two to four weeks from now.

We really should go home tomorrow. As everyone knows, we have spent thousands of dollars to be here, for what we believe are the best doctors.

Yet, when I bring up going home to my mom, she keeps putting it off, saying she doesnt want to discuss it, and using an upcoming heat wave as an excuse not to. Granted, as some may remember, we were forced to hospitalize her in Lancaster General, after she was released from the hospital too soon last October, resulting in a ten day hospital stay in Lancaster.

While I realize she might not want to go home tomorrow, and rest.. a day.. or two... and while I understand her apprehension and fear, I dont understand the idea of staying here much longer than we need to, considering the significant sums we have spent.

Honestly, I dont know when we're going home. Mom claims she's not feeling well, but part of me believes it is a bit of a self fulfulling prophecy. The thing she was hospitalized with was partially a reaction from the end of radiation, and perhaps a chest infection. This has supposedly passed, due to antibiotics.

As I've posted before, I havent been home since June 19th, and I've been home two weekends since May 26th.

This thing is my mom's call. However, I hope she gets better, and decides to go home soon.

Anyhow, so thats the update. The next steps are going home. (Hopefuily) and then meetings with the chemo Dr, and radiation Dr, 2 to 4 weeks later, and then a scan, about two months later.

Thanks to all those who have supported me through this situation. Oh, and btw, the food at St Clares is TERRIBLE! I have lost some weight this weekend, which probably wasnt a bad thing.

Mitch
 
Her signs are going to be up and down as her body adjusts to everything that it just received by the doctors. I'm sure she doesn't want to get up and go after dealing with being there and everything that came with it.

Give her a day or two to relax and try to bring it up again. But at least the treatments are over, now the hard part of waiting for the tests and the results begins.
 
Hi Mitch,

What a roller-coaster ride, my friend! I continue to keep my hopes up for your mother. She is definitely a fighter! Continue fighting - my friend!

Its ticklenv, in case your wondering who this post is from.
 
Thanks for the advice, Leo. I think what you are suggesting may be a good idea.

Hi, ticklenv/jager. Nice name, btw. I like it!

Yes, it is a rollercoaster, but this part is.. medically over.. for now.

I checked the Lancaster temps for later in the week. Sure enough, 90 to 95, and, while our apt AC is not great, its like that every summer! We cant stay here until it cools off in Oct!

I'm hoping what Leo says is right, and that my mom will want to go home by late week, at latest. More than that, would be unneeded, to me.

Mitch
 
Hang in there my friend. Keep fighting the good fight. Cancer is a constant battle, hopefully you will get good news from your doctors. You and your mom are in my thoughts and prayers always. :twohugs:
 
Thanks, kurch, I appreciate it.

As everyone knows, I've been mega patient and supportive over the last two months. With treatment over, I just want to go home, and resume some sembalance of normalcy. I'm hoping my mom comes to her senses in the next day or so, and agrees to go home.

Mitch
 
Your mom has been through a lot, let her rest up for a few days then maybe you can go home. Its tough to deal with but its for the greater good your mom being healthy. Your both in my prayers and thoughts.
 
I've been gone for almost four days, since early Friday morning.

On Friday morning, I had to take my mom to the ER at St Clares. She was coughing dark, heavy green mucus, with a little blood, and Dr B admitted her to the hospital. Then, of course, the fun began again!

Of course, many tests were taken, the most significant of which were of my mom's heart. The doctors called in a heart specialist. After tests on her heart, the heart Dr, a very nice man, determined that she has nothing structurally wrong with her heart. However, she's been having very weird blood pressure, and a rapid, racing heartbeat. The Dr thinks it could be from the chemo.

While we were there, in addition to the tests, my mom had her last radiation treatment, which was today.

As happened the last time, Dr B, perhaps with pressure from Medicare, and hospital adminstration, released her. My mom feels weak. Medically, there is no reason for us to stay in Denville. She has no more Dr visits, no more chemo sessions, and no more radiation treatments. Our next meeting is in anywhere from two to four weeks from now.

We really should go home tomorrow. As everyone knows, we have spent thousands of dollars to be here, for what we believe are the best doctors.

Yet, when I bring up going home to my mom, she keeps putting it off, saying she doesnt want to discuss it, and using an upcoming heat wave as an excuse not to. Granted, as some may remember, we were forced to hospitalize her in Lancaster General, after she was released from the hospital too soon last October, resulting in a ten day hospital stay in Lancaster.

While I realize she might not want to go home tomorrow, and rest.. a day.. or two... and while I understand her apprehension and fear, I dont understand the idea of staying here much longer than we need to, considering the significant sums we have spent.

Honestly, I dont know when we're going home. Mom claims she's not feeling well, but part of me believes it is a bit of a self fulfulling prophecy. The thing she was hospitalized with was partially a reaction from the end of radiation, and perhaps a chest infection. This has supposedly passed, due to antibiotics.

As I've posted before, I havent been home since June 19th, and I've been home two weekends since May 26th.

This thing is my mom's call. However, I hope she gets better, and decides to go home soon.

Anyhow, so thats the update. The next steps are going home. (Hopefuily) and then meetings with the chemo Dr, and radiation Dr, 2 to 4 weeks later, and then a scan, about two months later.

Thanks to all those who have supported me through this situation. Oh, and btw, the food at St Clares is TERRIBLE! I have lost some weight this weekend, which probably wasnt a bad thing.

Mitch

She may be thinking that if you just go asap something may happin making her & you go back to the hospital you just left... maybe!
 
Thanks, Angel. Yes, she has been through a lot. Hopefully she can rest some, get healthy, and would then want to go home.

love feet, I think her thoughts are exactly what you said. In October, she was also let out of St Clares due to "insurance". We went home to Lancaster, and 24 hours later, I had to rush her to Lancaster General ER after an asthma attack. She was there for ten days.

Hopefully, she can get stronger, and we can go home not too long off.

Mitch
 
I guess that you're staying in a motel? The Weather Channel is calling for 97 degrees on Friday. Your Mother will need air conditioning wherever she is staying.
 
Yes, carl. We've been staying in a hotel for the past two months. I know the forecast on Friday is bad. Thankfully, our hotel has very good A/C.

The latest forecast for Lancaster on Saturday is a high temp of about 90 degrees. I think I've gotten her to agree to go home then. I hope so. It will be nice when this journey ends.

Mitch
 
I suppose your mothers reluctance to return home right away is understandable given what happened last time, but I also know how anxious you are to finally get home and I don't blame you one bit. Hopefully things will remain stable for a few days and she will be ready. On the subject of hospital fare I can definitely sympathise. I've spent more time in hospitals looking after friends and family than I care to think about, and ate there as little as possible. My best to you both Mitch.
 
Thanks, bug. I appreciate your thoughts.

Unfortunately, it looks like my mom is getting worse, and this time the hospital may not be an option.

She has a bad stomach, and little appetite at all. I e-mailed the Dr a bit ago, and he told me that "The hospital was very forceful in discharging her". It's all Medicare/Insurance, etc. She probably needed another few days there.

I have no idea what comes next. Staying here close to the hospital might be a good idea, but I dont know how feasible it will be given the cost. The hospital may not be an option again unless she God Forbid has a major problem. Hopefully, God willing, she will improve on her own.

Mitch
 
I'm sorry you have another setback, especially that your Mom isn't feeling good 🙁 The insurance companies are horrible :disgust: so maybe it is good you're still very close to what seems like the best doctors & hospital (with much better AC too!! 😱 Thank goodness ) Thoughts & prayers!! :twohugs:
 
Been following things. But, this is my first chance to post. I hope that you can get home soon. But, I also understand your mom's hesitation. Patience is the best gift you can give her right now. Have you asked the doc about trying something like megase to help her appetite? If she's not eating much, it's quite possible that the stomache upset is partially from having nothing in there for the acids to work on. Megase does wonders for helping boost the appetite...and often the emotional status as a result of having more strength. As always, you both remain in prayer.
 
Babbles, thanks.

Ann, thanks for your thoughts. I havent heard of megase. I could ask about it.

To be honest, and everyone knows Ive been Mr Supportive, but, I'm getting loopy after six straight weeks of sharing a hotel room with my mom, and not having the computer for more than five minutes. Its midnight now. Some people take this thing up for hrs. I've been on it.. 2 minutes, and someone came up to me and wants to use it.

I know my mom was sick, but I think she is also operating out of fear. If she doesnt have to be hospitalized again, we really should get home by the end of the week. The way things have gone, it wouldnt surprise me to be here in 2 weeks from now.

Thanks to everyone for their support.

Mitch
 
Not that its important, but.. it would figure this would happen!

As baseball fans and others might have heard, my Atlanta Braves played a 19 inning game with the Pirates last night that ended at 2am Atlanta time. Had I been home, I could have watched it. Here, all I did was hear highlights.

I talked to her again this morning, 36 hrs after hospital discharge, and shes still being short tempered about going home. The Dr, while he said he can "always" readmit, wont be doing so, unless she relapses.

I'm continuing to hope she will agree to go home by Saturday at latest.

Mitch
 
My mom's new day to go home has now been changed to Monday. She's been sleeping all day. I dont know what to do. She's hardly eating, sleeping all the time, doesnt want to go home, and doesnt want to go back to the hospital, which is probably where she belongs, considering her energy level, and condition. She seems to be stuck in a holding pattern.

I'm hoping she will rally soon. If not, I'm worried about what will be.

Mitch
 
If you think her behavior is anything other than exhaustion from treatment, make an executive call and take her to get help.

If you aren't sure just let her sleep for a while. If it gets worse take her to the hospital.
 
Leo, I agree.

She just got up and ate some rice pudding, but, it sounds like she has a bad chest cold. If it doesnt get better, I told her to call the radiologist, Dr C, in the morning, and I'm going to take her over to see him tomorrow. I personally think he should examine her.

Mitch
 
If your mom has any sort of setback cold, effects from the treatment, chest cold ect take her back to the hospital. It could be a reaction to all the treatment she has under gone. however if it doesn't improve the hospital is the right call.

The fact she ate something is a very positive sign
 
Thanks. Angel,. but.. she's still not doing well. Shortly after I made my last post, she had an almost non stop coughing spell, and sounded almost as bad, if not worse, than when they admitted her on Friday morning. She then fell into a deep sleep. She CLAIMS that she will call Dr C tomorrow if the coughing doesn't improve, but I dont believe her.

I hope I'm not watching her fade away before my eyes. No energy, no appetite, non stop coughing,. perpetual sleeping. Dr C said that radiation will drain her energy, but it seems she really isnt doing well.

The chemo Dr told us last night that they can ALWAYS (His emphasis in his email to me) readmit her. If I dont see an improvement by early tomorrow morning, that's exactly what I'm going to ask him to do.

Mitch
 
Thanks, Bill, my friend. I'm trying to stay strong. I just wish we would have some good news, instead of setbacks.

Mitch
 
Just take it step by step day by day, its all she and you can do. Keeping you and your mom in my thoughts and prayers.
 
Thanks, Angel, I appreciate your good wishes, and thoughts. You just said what my mom has been telling me, that she will have to take her departure from here day by day, but, as you can imagine, after so many weeks, I'm eager to get home to a bit of a sembalance of my normal life.

Mitch
 
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