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My Mom is Dying...

Amnesiac

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Oct 13, 2002
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...even though she isn't the first and unfortunately not the last.

Briefly, my mom conctracted a moderately slow cancerous tissues growth in summer of last year. It wasn't in any organs so I was very confident that a full chemo treatment would blast the bitch away. Over a long and exhausted remainder of '06 she went to Mayo CLinic to get radiation after a month or so of chemo and was cancer free by December. Aside from some remaining fatigue and some slowly growing peach fuzz on her head, she was fine, and even went back to school (she's a librarian) last month.

Literally LAST week her minor stomach pain became stronger, and after treating it unsicssessfully with Mylanta for "gastric reflux" disease, the pain became so bad that she couldn't hold down food or even move. She went to the hopsital HERSELF for a stomach scan--along with a lengthy list of possible stomach afflictions that I demanded they perform (parasites, impacted bowel)--and they found spots on her liver scan.

Next Day Thursday they got the CAT scan results back: small mass cancer had already ballooned her liver, and spread to her lungs and then to her lymphatic system, which means "fucked" in all-capital letters.

She's too damn weak to undergo a full chemo regiment and another radiation treatment would kill her just as well. The only thing we can do is a once-a-week chemo treatment to reduce the swelling and internal discomfort. She has 5 more treatments to go and could maybe handle another set later if the pain comes back, but in the end it's all to make her comfortable.

I'm...I'm gonna lose her this year one way or another. And there's nothing we can do about it.

I look at her all frail and achy and always asleep and I try to go out and do normal things like going to work, make plans, and even though I'm not feeling helpless anymore because we're fighting the best we can, I'm just SOFUCKINGPISSED! because I'm not ready to lose her: she's the only thing I have that means anything to me at all. My friends here matter more to me than the real-world friends I have at work, but she's the only person I have that i care about this much, and when I lose her, I got nothing left. And neither does my dad because he needs her more than I do. He's already watched his (perfectly heathy) sister die last year--during the chemo treatments I might add--and now the only woman for him, the light of his eyes...I expect it'll kill him too, or come as close as it can.

So, until further notice, I'm cancelling all party participation this year: I have to withdraw from NEST '07 and MTP #11 and maybe even #12. Without her income, my dad relies on his pension to pay for everything and I have to start building my reserves when I'm not watching mom like a hawk for the next year.

If anyone here has any advice on how to prepare yourself or what to expect in losing a mother, one you're very close to, and a damned sweet and lovable person for whom half her friends would walk through Hell to get her anything she needed, I'd appreciate a crash course on what I need to look forward to for the time when she finally leaves us.

I'll still hang out here, but I'm gonna disappear for a while when the day comes. I'll eventually return but it might take a while.

Special thanks go to 4Pawz who'se held my brain as it slides out my ear and hairdried it back in place these last couple of days. As damn fine a woman there herself.

Thanks for listening guys,

Amnesiac
 
Amnesiac,
I can not even begin to tell you how to handle things, because I have not been through that, but what I can do is point you to organizations in your local area or other groups that people might have gone through what you are.
I know one day Ill be having these thoughts about my own mother, she will be going in for some major sugery herself in May and Im doing my best to keep up apperances for my kids and rest of the family.
You do what you need to Amn, we will all be here....the TMF isnt going anywhere. Im sure everyone understands you cancelling trips, you have your priorities straight, and right where they should be.
You take care of your family and if nothing else, spend as much time with your mom as you can and do you best to enjoy it. Make every moment you can, so you can thrive on the memories of happy times, remember her for how she was and treat her with the same love you always have.
This is diffcult to type, not knowing really what to say but seeing someone who wants a few words. I dont want to say the wrong thing or to bring things up that might hurt worse...but you seem strong and I know you will pull through. Ive never really spoken to you directly before but I guess at times like these, you can never have enough friends or ears to listen to.
If you ever need to call, scream, or something at someone...PM me dude or even Ill send you my phone number.
Take care man, if you need some emotional support, Ill do what I can.

Rob
 
Wow Amnesiac! I am so sorry to hear that! I hope the best for you, her and just everyone! I just wish I could say something more than the cliche response, but I don't think there is any combination of words that could make you feel better.
 
I can't think of anything helpful to say, that will make this any easier... but I do wish you and your family the very best that could possibly be.
 
Amn, I am so sorry to hear this, my friend. My thoughts and prayers are with you, your parents, and your family.
As some of the others have said, there is no real advice I can offer, but what I will say is that if you ever need to talk, or vent, my PM box is open to you anytime.

Take care of yourself, my friend.

Mitch
 
i can tell you exactly how to prepare...shoot me a pm, ok? and i'm so very sorry... i took the liberty of sending you a pm first..if that's ok..
 
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Im really sorry to read this about your mom and I truly wish you all the best in the comming year. My blessings are you you and your family.
 
I have sent you a pm my friend....amd now Tracy and I will pray for her and for your family......
 
All I can suggest is spending as much time with both your parents as you possibly can. Spend time with just your close relatives together. Don't allow other family and friends to take over your home by spending too much time there but do allow them short visits. Let your mother take the lead. Take lots of photographs and make sure you have some good memories. Most of all, tell your mother that you love her and that you'll look after your dad. Tell your mother everything that you've ever wanted to tell her. Talk to her about your plans for your future. She will want to know that you and your dad will be ok. She'll be worried about you. Even if your mother does not respond to you she will always be able to hear you, it's important to remember that. It's ok to cry infront of your mother and it's ok for her to cry infront of you but try to be strong and supportive too, which I'm sure you already are doing. It's ok to laugh and talk about the good and funny times. It's still ok to treat your mother the same way you always have. It's ok to still need your mother and let her know that you need her. It will be very hard but you will get through it even if you don't think you will. Everyone copes in different ways. There is no right or wrong way to get through it. You have to do what's best for you and your family.

We don't know each other but please feel free to PM me if you feel the need to talk. I won't tell you what to do or offer advice (unless you ask for it), but I will read everything you type and I will respond. I won't judge you no matter what you tell me.
 
I had given eventualities a great deal of thought back when my mom had her bout with cancer in late '05. We managed never to reach the phase that you're at now, though. In the scary part, when it came down to it, I found I could only spend as much time with her as I could.

I'd suggest that in those times when she's awake and able, talk and tell stories, or let her tell you some, and remember them as best you can so you can someday tell your family and your children. So you can save that part of her.

I think Rob and especially Aun have offered some good suggestions, and certainly, there's lots of support, here. You're welcome to PM me as well. I'd be honored to hear from such a trivia wiz as yourself anytime, no matter what.

Sorry it happened. You and yours are in my thoughts.
 
Hon,

I'm still here. You can still call me anytime you want. If it's the long distance phone thing, just give me a call and I can call you right back, I don't get charged for that.

Sorry I couldn't call you last night, I got held over at work until an unbelievably rediculous hour. But you can still call me, anytime, anywhere. If you need to, call me at my work number. They will notify me and I will call you back as soon as I possibly can.

Remember, Boober's here for ya too. I will always be here for you, no matter what. So grab me if you need me (just not on the butt 😛 )

Hang in there, you and your family are in my thoughts. I'll give ya a call tonight when I get off of work.

Pawz
 
There was a woman I knew whom I'd loved since I was a boy. She came down with lymphatic cancer, underwent chemo and radiation, and thought she'd beaten it. They did the usual followups, checked her chest and so forth but about a year later she started reporting abdominal pain, and they realized that while they were looking at her upper chest (where the cancer had been originally) it had crept back to her liver and pretty much destroyed it before they thought to look. By the time they knew what was happening she was terminal. They told her they could extend her life to perhaps a year with palliative radiation therapy - with all the misery that entails - or they could simply give her drugs for the pain and she would live perhaps six months.

She decided for pain management. She took a few trips to say good-bye to her loved ones (me included), and she died quietly in her sleep a half-year later. I thought it took a lot of courage, but she told me it didn't, really. I'm still not so sure I agree.

I still miss her, and that was 15 years ago. But the fact that she knew what was coming and looked at it squarely helped me to do the same. For whatever that's worth.
 
Many thoughts and prayers are with you. I almost passed away almost 2 yrs ago, and while the circumstances were very different, a freakish event, I can tell you there can be an absolute sense of peace.
I hope that helps, and more so that you won't need that information, or not for a much longer time -- There is great advice above, I won't repeat it --
Again, many prayers and thoughts are with you, and feel free to PM me as well please.
 
I also wish i had some words to offer that might ease your pain my friend,but i know of none......Perhaps,when your mother is feeling up to it you might make some tapes if you have access to a camcorder.I know several people who have done that in similar cirmstances,and they were glad they did later.You will all be in my thoughts and prayers......
 
Ya know... this is such a tough time and my thoughts are with you. I lost my mom 3 yrs ago after a many year battle with poor health and even though I know thats what's supposed to happen (they do die before we do), I think of her every day and sometimes get choked up missing her.

I do have wonderful memories and shot some video a few weeks before she died. I remember the smell of her hair and her voice as if I saw her this morning. The only wisdom I have to offer is this: You are at the base of a hard mountain to climb but you will get to the top at some point. Moving on with life is hard but necessary and good therapy too. And besides, mom would have expected nothing less.

Best to you


Louis
 
I'm so sorry to hear that Amnesiac. You'll be in my thoughts. Take care. I wish everyone the best. :smilestar
 
I say this yesterday but it was really hard for me to respond. I send lot's of prayers but this is still raw for me. I lost my mother exactly 2 months ago, she was my mom and my best friend. She was diagnosed over last summer with Pancreatic cancer, very aggresive cancer but they actually caught hers early and felt she had a good chance. She was operated on 9/11 at Sloan kettering in NYC by one of the best surgeons of this type. She came through the surgery great and they thought they had it all. But she never did properly recover from the surgery with a lot of complications, just as she took 1 step forward looking like we had my mom back she would take 2 steps back. About 1 month after the surgery she really ceased to be the mom I knew, I just spent a lot of time with her, even sleeping in her hospital room on my 45th birthday...by December she was really bed ridden and miserable, she cried a lot and it was really hard to see her that way. When she went into ICU when they found her unresponsive it was really hard but my whole immediate family was with her when we decided to let her go. It was hard but she was no longer suffering. I miss her a lot, but she is not suffering....nothing can ever replace her. I have 2 small children at home so I just try to go on with our lives....and I instill in them their grandmother everyday!
 
I am so very sorry to hear about your mother. I have been there and done that, so I do have some experience with what your going through. It's a series of high and low times. Things will look great and you'll even convince yourself that the inevitable isn't going to happen. Then things will get ugly enough to slap you back into the reality that your loved one is going to leave you.

The grieving starts while your loved one is still alive; learn to say all that needs saying. Do as much as you can with your mom and create new memories to hang onto during the tough times. Grieve in your own way and in your own time; do not let anyone else gauge your grief for you and do not feel guilty about it. It's natural to miss her in body, but her spirit will last with you forever.

I just went through a tough period on my job where I simply didn't care what happened to me. If it weren't for my mom's spirit (she had one hell of a work eithic) dragging me out of bed and forcing me in my SUV every morning for 60 days, I would've have been fired by now. So, believe me when I say her spirit will be there during your best and worse times.

If you ever need to chat, let me know. I've been there and would like to help as much as you need.
 
Bummer, man. I'm so sorry to hear this. I won't offer any advice since a number of others have offered plenty of heartfelt and wise guidance and consolation. All I will offer is this: keep your head high and your chin up.

If you need anything, lite and I are available by PM or phone. If you need our phone number, just PM us and we'll send it to you.

R

M
 
I'm so sorry Amnesiac to hear of your bad news. I wish I could say I've been there but honestly I haven't. You know you have many friends here at the TMF. I just hope you'll keep in touch so everyone knows you are okay. You know where my PM box is.

Sandee
 
Advice: Prepare yourself by realizing this is probably going to happen...thats what I did when I knew my dad was dying. I just told myself I know its happening and I will be ok as best I can...and he is dying physically but he will always forever be around. As I remember in 7th grade a priest came in and explained to us that nobody ever really dies...sure the body dies, but that is only the gift wrapping on the present...the real gift itsself is the soul...and that never dies...so really people don't die. Of course you'll miss her there physically in front of you and that type of interaction but now you can have a new interaction...and the PERSON her is not her body...the person you talk to/like really is the inside/her soul/who she is and that does not die.
 
I am really sorry to hear about your mom. As my wife (Jpie1) mentioned earlier, the closest thing to me losing my mother was losing her last Dec. She was like a mother to me and it really sucks, to say the least.
 
Amnesiac said:
...even though she isn't the first and unfortunately not the last.

Briefly, my mom conctracted a moderately slow cancerous tissues growth in summer of last year. It wasn't in any organs so I was very confident that a full chemo treatment would blast the bitch away. Over a long and exhausted remainder of '06 she went to Mayo CLinic to get radiation after a month or so of chemo and was cancer free by December. Aside from some remaining fatigue and some slowly growing peach fuzz on her head, she was fine, and even went back to school (she's a librarian) last month.

Literally LAST week her minor stomach pain became stronger, and after treating it unsicssessfully with Mylanta for "gastric reflux" disease, the pain became so bad that she couldn't hold down food or even move. She went to the hopsital HERSELF for a stomach scan--along with a lengthy list of possible stomach afflictions that I demanded they perform (parasites, impacted bowel)--and they found spots on her liver scan.

Next Day Thursday they got the CAT scan results back: small mass cancer had already ballooned her liver, and spread to her lungs and then to her lymphatic system, which means "fucked" in all-capital letters.

She's too damn weak to undergo a full chemo regiment and another radiation treatment would kill her just as well. The only thing we can do is a once-a-week chemo treatment to reduce the swelling and internal discomfort. She has 5 more treatments to go and could maybe handle another set later if the pain comes back, but in the end it's all to make her comfortable.

I'm...I'm gonna lose her this year one way or another. And there's nothing we can do about it.

I look at her all frail and achy and always asleep and I try to go out and do normal things like going to work, make plans, and even though I'm not feeling helpless anymore because we're fighting the best we can, I'm just SOFUCKINGPISSED! because I'm not ready to lose her: she's the only thing I have that means anything to me at all. My friends here matter more to me than the real-world friends I have at work, but she's the only person I have that i care about this much, and when I lose her, I got nothing left. And neither does my dad because he needs her more than I do. He's already watched his (perfectly heathy) sister die last year--during the chemo treatments I might add--and now the only woman for him, the light of his eyes...I expect it'll kill him too, or come as close as it can.

So, until further notice, I'm cancelling all party participation this year: I have to withdraw from NEST '07 and MTP #11 and maybe even #12. Without her income, my dad relies on his pension to pay for everything and I have to start building my reserves when I'm not watching mom like a hawk for the next year.

If anyone here has any advice on how to prepare yourself or what to expect in losing a mother, one you're very close to, and a damned sweet and lovable person for whom half her friends would walk through Hell to get her anything she needed, I'd appreciate a crash course on what I need to look forward to for the time when she finally leaves us.

I'll still hang out here, but I'm gonna disappear for a while when the day comes. I'll eventually return but it might take a while.

Special thanks go to 4Pawz who'se held my brain as it slides out my ear and hairdried it back in place these last couple of days. As damn fine a woman there herself.

Thanks for listening guys,

Amnesiac

So sorry Amnesiac,that sucks big time. I shall keep your mother in my prayers.
 
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